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Pacific Northwest Carcinoid Net Support

Sites of Interest

  • PRRT Info

    This site was created in the spring of 2011 by Josh Mailman and Gary Murfin. The focus of the site is the treatment of Peptide Receptor Radionuclide Therapy (PRRT) and the use of the Gallium-68 PET/CT scan as a diagnostic and montoring tool for NETS.The site also provides information about getting this treatment at the Zentralklinik in Bad Berka, Germany where Josh and I have been treated with PRRT. 

  • North American Nueroendocrine Tumor Society

    Professional medical society - Treatment guidelines are here.

  • Carcinoid Cancer Foundation
    Founded Dr. Warner.
  • The NET Alliance
  • The Healing Net
  • Caring for Carcinoid
  • Neuroendocrine Tumors
  • Interscience Institute

    Private Laboratory located in California. Comprehensive guide to NETS testing. Download or request the publication -- Neuroendocrine Tumors: A Comprehensive Guide to Diagnosis and Management.

  • Novartis Carcinoid site

    Site operated by Novartis maker of Octreotide Acetate (sub-Q) and Sandostatin LAR (long acting)

  • Novartis Oncology site
  • Ipsen Pharma site

    Site by Ipsen, maker of Somatuline Depot, the long acting Lanreotide shot

  • Know Your Nets - Ipsen site about NETS

    This is a new site originating in August 2015. Basic info on NETS created by Ipsen Pharma

  • Clinical Trials

    A US National Institutes of Health site that identifies all clinical trials and related information

  • Association of Cancer Online Resources (ACOR)

    Online list service using email to connect patients and caregivers. Go to site and look for Carcinoid Group and then sign up to receive posts to the listserve or get posts in a digest format. 

  • Carcinoid Cares
  • Facebook Sites

    Carcinoid Cancer Foundation

    Carcinoid Neuroendocrine Cancer Awareness

    Carcinoid Coffee Cafe

    Carcinoid Cares

    Carcinoid Cancer Awareness Network

    Lovable Lungoids

    Healing Net Foundation

    NET Patients Sharing Knowledge and Experience

    Dr. Liu’s Zebras

  • Seattle Cancer Care Alliance (SCCA)

    SCCA is an alliance between the University of Washington School of Medicine, The Fred Hutchinson Cancer Research Center and Children's Hospital. Several doctors knowledeable about NETS are located there. 

  • Excel Diagnostics (Houston, TX)

    Excel is located near Houston TX. It is a private clinic that has been in the forefront of NETS treatment using PRRT. They participate in several clinical trials on PRRT. 

  • University of California - UCSF
  • Stanford University

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