Special Event – Speaking Up 

Hosted by NorCal CarciNET Community with funding provided by Lexicon Pharmaceuticals

Moderated by Josh Mailman, President of NorCal CarciNET Community.

Date: Saturday, October 6, 2018

Time: 2pm to 4:45pm – Light refreshments served

Place: Meeting Room - Just to the left ofTula’s Restaurant at 2222 2nd Ave.  The facility is located on the East side of 2nd avenue, between Bell and Blanchard streets. Street parking is available. The facility is on the second floor.

Other Parking: Republic Parking Lot at 2216 3rdAve at your own expense

If you are interested in attending, please contact Fran Sharp directly at This email address is being protected from spambots. You need JavaScript enabled to view it.


2:00 - 2:25  What's New in NETS

Panel discussion with Dr. Kennecke, MD, Medical Director of the Virginia Mason Cancer Institute and Dr. George Fisher, MD, Stanford University

2:25 - 3:15 Speaking Up

Talking to your medical team about challenges with your disease including Carcinoid Syndrome, Diarrhea and other symptoms or conditions that can be challenging to discuss. Panel includes Dr. Kennecke, Dr. Fisher, Kathleen Sanders ARNP, MP, who is an Integrative Oncology NP from SCCA, and two patients from the NETs support group community.  This is based of a panel that Josh did in January 2017 which was written about in Cure Magazine

3:15 - 3:30 Break -- Laurie's book to be on sale

3:30 - 4:00How To Win Your Insurance Appeal

Interview with Laurie Todd, the “Insurance Warrior” and author of ‘Fight Your Health Insurer and Win’ and her new book ‘APPROVED’

4:00 - 4:45 Networking /Social Time - Laurie's book to be on sale


 Next Official Meeting of the Support group is scheduled for October 20th at the Seattle Cancer Care Alliance location. Meeting starts at 11am and goes to 3pm.