Corie Dean is recognized as the founder and leader of the Pacific NW Carcinoid NET Support Group from 2006 (founding) to November 2013.

CorieDeanCorie was diagnosed with carcinoid cancer in 1998 after emergency surgery in Puerto Vallarta, Mexico on Thanksgiving Day. She started the Washington chapter of the Pacific NW Carcinoid-NET Support Group in 2006. In that same year, Corie co-chaired the Pacific NW Carcinoid / NET Symposium in Portland, Oregon. As a result of her active involvement in understanding her cancer, over the years she counseled, informed, and comforted many carcinoid patients and their caregivers.
When her cancer began to significantly progress during 2012 and 2013, Corie traveled to Bad Berka, Germany for four PRRT treatments that enhanced and extended her life. Eventually she succumbed to the cancer in November of 2013.
Those of us who had the privilege of knowing Corie will always remember her efforts at running the support group and her energy and time spent assisting other patients.

Special Event – Speaking Up 

Hosted by NorCal CarciNET Community with funding provided by Lexicon Pharmaceuticals

Moderated by Josh Mailman, President of NorCal CarciNET Community

Date: Saturday, October 6, 2018

Time: 2pm to 4:45pm – Light refreshments served

Place: Meeting Room - Directly Above Tula’s Restaurant.  The facility is located on the East side of 2nd avenue, between Bell and Blanchard streets. Street parking is available. The facility is on the second floor.

Other Parking: Republic Parking Lot at 2216 3rdAve at your own expense

If you are interested in attending, please contact Fran Sharp directly at This email address is being protected from spambots. You need JavaScript enabled to view it.   by September 29th

Agenda

2:00 - 2:30  What's New in NETS

Panel discussion with Dr. Kennecke, MD, Medical Director of the Virginia Mason Cancer Institute and Other Speakers (TBD) from the NANETS Symposium

2:30 - 3:00How To Win Your Insurance Appeal

Interview with Laurie Todd, the “Insurance Warrior” and author of ‘Fight Your Health Insurer and Win’and her new book ‘APPROVED’

3:00 -3:15 Break -- Laurie's book to be on sale

3:15 -4:00 Speaking Up

Talking to your medical team about challenges with your disease including Carcinoid Syndrome, Diarreha and other symptoms or conditions that can be challenging to discuss. Panel includes Dr. Kennecke, Kathleen, who is an Integrative Oncology NP, and two patients from the NETs support group community. 

 

Panel Includes – 

NANETS doctors -  Dr. Hagen Kennecke, MD and one other doctor, TBD

Kathleen Sanders, ARNP-BC MPH  https://www.seattlecca.org/physicians/kathleen-sanders

+ 2 members of PNW Support Group (TBD)

4:00 - 4:45 Networking /Social Time

 The Speaking Up panel is meant to be dynamic and interactive, so plan on speaking up! 

 

Next Official Meeting of the Support group is scheduled for October 20th at the Seattle Cancer Care Alliance location. Meeting starts at 11am and goes to 3pm. 

 

 

Welcome to the new home of the Pacific Northwest Carcinoid Net Support Group.  Our group meets 3 times a year on a Saturday.

Our site is a work in progress. We will have more information soon. 

Thank you NorCal CarciNet Community for hosting our site.

2014 day of learning and support

Featuring Dr. Veena Shankaran, Fred Hutchinson Cancer Research Center and Dr. Flavio Rocha, Virginia Mason Medical Center

Click below for presentations

Presentations are available.